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how to live with the pain?
had another exacerbation of pain last nite after driving in a traffic jam and on my feet for about 3 hours. kind of phobic to even walk or stand. i am getting impatient for having to live with this pain. i was told to learn to live with it. i tried in the last 3 weeks, it didn't work out the way i wanted. with the current attack, life seems so dull to me. does that mean that i can no longer enjoy a walk in the garden, a stroll in the mall or a cruise in the town? does anyone have any idea on how to improve pain threshold and live with this pain? i have suffered for the last close to one year now.
worse, drs don't believe that PF can be this bad. i didn't know it till i get it myself. drs are basically not empathetic enough. or am i just oversensitive to the pain? appreciate any reply from anyone.
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Replies to This Discussion
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Permalink Reply by Debi Griffiths on -
I feel you Kittima. At times the pain is so dibilitating I just go to bed. I have an extremely supportive husband thank goodness.
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Permalink Reply by Kelli Wasielewski on
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I don't think you are oversensitive to the pain. It is very painful! I have had it for 10 years. After many proceedures, I think I have come to the realization that I may have to alter my life style. Which means sitting down when I need to and icing my foot when needed. It sucks but keep telling myself it could be worse.
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Permalink Reply by Sue Hayes on
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Nobody can ever imagine unless that have this dreaded "thing" how painful and debilitating this is. I have it in both feet - will be 3 years this summer. I have tried everything and spent thousands of dollars on everything - except surgery - which I will not do. I have absolutely run out of options also! You are not oversensitive to the pain - I even read from someone on this forum that they are on morphine for this!
Sue
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Permalink Reply by janice lee on
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Well i have had this problem for about 3 years now and just learned what is was. My whole family thought i was lying until one by one they would see me get up from sitting too long or walking too long or just getting out of bed in the morning and they would say you must really be in pain or does it really hurt that bad when i would limp so bad i could hardly walk. This is very very painful. You are not alone and as i can see today i am not alone. Before i was told what was wrong with me i thought hey maybe i am crazy, but i had not done any research about my symptoms and when i finally told a doctor about it told her almost word for word what it would say in a text book what the symptoms of this problem is, i was not happy to have it but happy to know i am not crazy. But to deal with this pain over the years i have got great shoes, the landeu brand shoes to work in and i sit as much as i can without sitting too long because that makes it worse.
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Permalink Reply by janice lee on
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By the way i often joke that if i had this in both feet i would have to be on disability because the pain is too intense. I joke so i don't cry. I work 2 jobs and both of them i am on my feet. Happily on both of them i am permitted to sit if i need to though. But in all truthfulness if i had it in both feet i would not be able to work at least not where i work now.
Sue Hayes said:Nobody can ever imagine unless that have this dreaded "thing" how painful and debilitating this is. I have it in both feet - will be 3 years this summer. I have tried everything and spent thousands of dollars on everything - except surgery - which I will not do. I have absolutely run out of options also! You are not oversensitive to the pain - I even read from someone on this forum that they are on morphine for this!
Sue
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Permalink Reply by Kittima on
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hi janice,
thanks for your reply. at least you reassured me that i am still normal. i thought i was crazy as no one can imagine how bad this can be. worse my docs told me that my psychology state affected my pain. i was devastated when they told me this, kind of irresponsible remarks. it has taken away so much from my life - i cant or dare not do what i once enjoy doing. i dreaded travelling or even shopping in the mall. try to minimise my exacerbations as much as i can. well i thought i was entering the world of insanity when my docs made such remarks. i really do not know how else to live with the pain. perhaps should just do like what kelli does. but my job necessitates me to stand for long hours. i usually suffer at nite, after a long day of work. the only one good thing i used to tell myself is at least it is not cancer.
janice lee said:Well i have had this problem for about 3 years now and just learned what is was. My whole family thought i was lying until one by one they would see me get up from sitting too long or walking too long or just getting out of bed in the morning and they would say you must really be in pain or does it really hurt that bad when i would limp so bad i could hardly walk. This is very very painful. You are not alone and as i can see today i am not alone. Before i was told what was wrong with me i thought hey maybe i am crazy, but i had not done any research about my symptoms and when i finally told a doctor about it told her almost word for word what it would say in a text book what the symptoms of this problem is, i was not happy to have it but happy to know i am not crazy. But to deal with this pain over the years i have got great shoes, the landeu brand shoes to work in and i sit as much as i can without sitting too long because that makes it worse.
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